Adalia Rose Williams Wiki
Adalia Rose Williams Biography
Who was Adalia Rose Williams ?
YouTuber Adalia Rose Williams, who has been open with her fans about living with a rare genetic disease, has died at the age of 15.
Williams, who was diagnosed with Hutchinson-Gilford progeria syndrome as a baby, also known as “Benjamin Button” disease, died Wednesday night, according to her Facebook page.
Adalia Rose, from Texas, was diagnosed with Hutchinson-Gilford progeria, a genetic condition also known as Benjamin Button disease, when she was three months old.
The condition, which affects fewer than 500 children worldwide, is categorized by extreme accelerated aging and has an average life expectancy of 13 years old.
As she grew up, she found fame on social media, racking up 2.91 million subscribers on YouTube and 379,000 Instagram followers.
“She entered [into life] in silence and left in silence, but her life was far from it,” she reads in the heartbreaking publication, which has received more than 714,000 reactions, 138,000 comments and 93,000 comments. shared. “She no longer feels pain and now dances to all the music she loves.”
Family
Her family thanked Williams’ loyal fans who “love and support her,” and asked for privacy as they mourn her loss.
Many fans left comments of love and support below the post, hoping that she “rests in peace”.
“I loved her so much,” posted a follower from India. “She has been an inspiration to many and she has touched millions of lives.”
Williams was an avid YouTuber
Williams was an avid YouTuber who also posted on other social media platforms. By documenting his life, he shed light on the realities of navigating the world while dealing with progeria, a chronic, progressive condition that he was diagnosed with at just 3 months old.
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Currently, the syndrome has no cure and causes rapid aging, accompanied by slow growth and hair loss. According to the Progeria Research Foundation, around 400 children worldwide are currently living with the disease.
The Texas teen, who surpassed the average life expectancy for people with the condition by age 13, started vlogging in 2012. Uploading her videos to YouTube, she eventually amassed 2.9 million subscribers.
Not only did she post health updates, but she dabbled in makeup tutorials, dances, and skits with other members of her family.
“She touched MILLIONS of people and left the biggest mark on everyone who knew her,” she posted to her family on Facebook.
Instagram followers
As she grew up, she found fame on social media, racking up 2.91 million subscribers on YouTube and 379,000 Instagram followers.
“She’s so small that you instantly think she’s going to be like a baby and you want to take care of her. But I didn’t realize that she’s 13 years old, and she’s just like any other smart 13-year-old girl. She was a bit cheeky!
“She said that she loves J.Lo, and that she likes to wear whatever J.Lo wears, and that she loves flowy fabrics and sparkles,” she said.
‘And I said, ‘Okay, you’re my ideal client.’ You’re Michael Costello’s girl.
“Knowing that we have the ability to do something for them and celebrate them and make them feel good about themselves… I just wanted to make their birthday dreams come true,” she added.
‘I feel like I’ve dressed everyone. It is an incredible milestone for my career. I feel like I’ve done so much and been so blessed, and now what I really want to do is start meeting more people like Adalia… What do I care? A couple of days on the sewing machine? A few hundred dollars worth of fabric and time, just to make someone else’s dream come true.
Quick and Facts
- Adalia Rose from Texas was diagnosed with Hutchinson-Gilford progeria, or Benjamin Button disease, when she was three months old
- The condition, which affects fewer than 500 children worldwide, is categorized by extreme accelerated aging and has an average life expectancy of 13 years old
- Earlier today, her family told followers that she died yesterday as a result of her condition
- As Adalia grew up, she found fame on social media, racking up 2.91 million subscribers on YouTube and 379,000 Instagram followers
- Videos of her dancing went viral, and two years ago, Jennifer Lopez’s designer Michael Costello gifted her dresses for her 13th birthday
Source: https://wikisoon.com/
